ELIXIR Rare Diseases

Ritka genetikai betegségek adatainak összegyűjtését és sztenderdizálását célzó közösség.

Tagok:

Résztvevő Intézet (Node)
István Balogh UD
Attila Gyenesei PTE SZKK
Bálint Bálint UD
László Buday, Virág Vass RCNS
Balázs Győrffy RCNS
István Csabai ELTE
Endre Bartha NARIC, UD
Gary Sanders Elixir HUB

Események:

ELIXIR Rare Diseases Call TC 25 September 2018
ELIXIR-EXCELERATE Rare Disease Use Case Task Leader-liaison TC 9 November 2018

 

Rare disease community led request for proposal (RFP) timeline

ITEM

DATE

WHO

Validate survey results aligned to roadmap

deadline 24th September

RD survey respondents

Call for discussion on the proposal to involve the whole community

25th September 3pm CEST

RD survey respondents, WP8 members, HoNs

Partners propose  actions for the RFP plan

deadline 7 October

All members involved

Each member votes favorite proposed action (if needed, 3-4 selected based on ranking and discussion)

deadline 9 October

All members involved

Call for agreeing actions and planning writing

10 October (Time TBD)

 

Call for final discussion (if needed)

To be decided

All members involved

Final draft to be reviewed

29 October

All members involved

Submission of application closes

31st October 2018. Deadline is midnight

Lead partner, with named partners in Cc to proposals@elixir-europe.org.